%0 Dataset %T Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development [Methods Study], United States, 2016-2020 %A Khodyakov, Dmitry %D 2025-12-15 %R 10.3886/ICPSR39626.v1 %I Inter-university Consortium for Political and Social Research [distributor]