TY - DATA T1 - Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development [Methods Study], United States, 2016-2020 AU - Khodyakov, Dmitry PY - 2025 DO - 10.3886/ICPSR39626.v1 PB - Inter-university Consortium for Political and Social Research [distributor] ER -